Can my family take part in IMAGINE ID?

After 5 years of being open to individuals with learning disabilities that have a genetic diagnosis, we have now closed recruitment.

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What were families asked to do?

Families were asked to complete some online questionnaires through a secure internet connection. These asked about their child’s behaviour, development and medical history. We also asked parents and/or carers about your own health. If children wanted to take part, we asked them to complete a fun drawing task.

Activities

How did children benefit?

Families with children aged 19 and under received a personalised summary report of their child’s strengths and difficulties. They may have found these useful for assessments for services, school or specialist treatments.

Benefits

We are interested in knowing more, what should we do next?

To find out more, see our Further Information & Resources as well as our Publications & Outputs page.

Information